top of page

Blog


Metabolomics Study has launched!
Opt In requires purchase of two kits. One is used at enrollment and the second in 3 months. You will get 2 shipments. *Please donate what you can. $379 buys one kit, $758 enrolls a patient into the study. Even $10 gets us started to help an ALS patient.
Jul 8, 20251 min read


Metabolomics analysis may help ALS patients
Amid the devastating blow to ALS patients and ALS researchers delt by the funding lords we have an idea. Part of our research uncovered metabolic markers, analytes, useful in assessing ALS patients. The metabolomics study conducted by Dr. Robert Naviaux, Professor of Genetics Biochemical Genetics and Metabolism Departments of Medicine, Pediatrics, and Pathology. He is Co-director, The Mitochondrial and Metabolic Disease Center (MMDC) in San Diago, CA. The “analytes” were lipi
Apr 22, 20251 min read


Another Incredible Year
A look back to the future in ALS research Twenty-twenty four was a busy year at NDR! We made incredible progress, but we still have far to go. We thank all who support our work, either with donations or science. We thank the staff that volunteered their time for the cause, Laura, Julie and Bill and greatly thank those that funded us and allowed us to continue the vision, a cure for ALS. We said good bye to several members of the research team, some retired, some moved on to
Dec 31, 20244 min read
Top 10 ALS news stories of 2024
https://alsnewstoday.com/news/top-10-als-news-stories-2024/
Dec 31, 20241 min read
Feeding tube best placed before major weight loss with ALS: Study
https://alsnewstoday.com/news/feeding-tube-best-placed-before-major-weight-loss-als/
Dec 31, 20241 min read
Healthcare costs increase as ALS progresses, Biogen study finds
https://alsnewstoday.com/news/healthcare-costs-increase-als-progression-biogen-us-study/
Dec 31, 20241 min read
THE EUROPEAN SOCIETY OF MEDICINE
Amyotrophic Lateral Sclerosis is a spectrum of diseases that needs a broad treatment approach Siobhan P Ellison DVM PhD1
Jul 2, 20241 min read


Clinical Trial FC-US-001
June 21, 2024 The last subjects for the clinical trial using FC-12738, affectionally called TVALA, had their final follow up visit on June 14. All is going well and the data will be exhaustively examined. I'm happy to say that there were no adverse events or concerns. The humans mirrored the animals studies, consistency is always good in science! The final study report will issue in a few months and we can move the studies into ALS patients. The protocol for the next stu
May 22, 20242 min read
bottom of page
