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NDR Group

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26 days ago · added a group cover image.

In the great effort to bring treatments to ALS patients Richard funded a clinical trial for FC-12738. This molecule is novel (Richard and I called it TVALA)...the world has never seen it before! It engages the failing immune system and will (hopefully) RESET an ALS patient's ability to normalize neuroinflammation—slowing disease and allowing doctors to stack additional life-saving therapies as patients change over the course of their illness.


The down side...the world has never seen this molecule before! The ever cautious FDA wants us to dose some normal folk before we go after saving ALS patients. Richard's Study enrolls 2 people (one dosed and one not, they are called sentinels) and if no one is adversely affected, and they are still alive after 8 days, we can then dose 6 additional normal people (at the same dose). We are happily reporting no adverse events after 8 folk got 4 mg…

This group is for those of you that donated to NDR. We wanted to create a space to let you know how we were spending your generous donations.

Sometimes we can't share things publicly, we have to wait until things are published to share to everyone. Alas, publication takes a year to see.

Our work moves quite quickly and we want to share the excitement as it happens. I used to do this daily with Richard and I miss those communications.

Before he stopped flying, Richard would buzz us in the lab in this plane— or hover his helicopter in our treetops! He'd always make a path across us when he returned home from a flight, low and full throttle. We miss that too!!


Welcome to our group NDR Group! A space for us to connect and share with each other. Start by posting your thoughts, sharing media, or creating a poll.

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